Help for people with Celiac Disease

The Center for Celiac Research (CFCR) is constantly working to increase the awareness of celiac disease among health care professionals including primary and subspecialty physicians, nurses, dietitians, public and private health care providers, food regulatory agencies, legislators, and the general population.

Our educational initiatives with the North American Society of Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN), the Children’s Digestive Health and Nutrition Foundation, and Practical Gastroenterology are listed below:

• Celiac Disease Evaluation & Management - CD-Rom and website offers a comprehensive source of information and educational tools for people with CD, their families and the medical professional.

• Clinical Practice Guideline Summary for the Diagnosis and Treatment of CD in Children.

• Gluten-Free Diet Guide for Families

• Celiac Diet Series with Practical Gastroenterology

A Gluten-Free Solution for School Lunches

In Rochester, Minn., it took a concerned parent to get the foodservice program to blaze a new dietary trail.  By Amy Leger.  To read the entire article, click here.

Celiacs Online

Celiacs Online is designed to share information with newly diagnosed and experienced celiacs who live in Maryland, but we believe people across the country will find it useful as an on-line directory. Our goal is to provide a resource tool so that celiacs can find support groups, current medical information, local food sources and fabulous food sites from Celiacs Online.  To visit this site, click here.

Baltimore Area Celiac Support Group

The Baltimore Area Celiac Support Group is intended for persons and their family members to come together to share the common experiences and problems unique to having celiac disease.  Support group meetings are held on a quarterly basis.  The Baltimore Area Celiac Support Group is run by a Volunteer Steering Committee that is responsible for organizing Steering Committee meetings and other events.

Membership in your local CSA Chapter also includes membership in the Cel-Kids Group. Our Maryland group was first started in 2003 by Jeanne Simkins, when her son Ryan was first diagnosed with celiac disease. Prior to that, no children’s support group existed in the Baltimore area.

To find out more and/or become a member of the Baltimore Area Celiac Support Group, visit their website at  www.marylandceliacs.org.

Nearly Normal Cooking for Gluten-Free Eating 

Jules Shepard, a long-time lover of all baked goodies, was diagnosed with life-altering celiac disease in 1999. Until that time, she had suffered through nearly ten years of misdiagnoses and a roller coaster of gastrointestinal symptoms. Transitioning from a steady diet of pizza, pasta and bagels to rice, beans and bananas was incredibly difficult, particularly without the aid of any tasteful specialty cookbooks or gluten-free mixes.

As an avid cook and good Southern woman, Jules attempted to continue creating delicious meals and tempting treats for her family and friends. But when they could stand gluten-free food no longer, she set about to revolutionize recipes without gluten. With the goal of making gluten-free food taste nearly normal, Jules spent years experimenting with various grains and flours to formulate recipes that offer a fresh and tasty approach to living and eating without missing the wheat or gluten.

Nearly Normal Cooking for Gluten-Free Eating is the culmination of cluniary experiments, research and insights into gluten-free life. In a world where gluten-free food has nearly always been synonymous with enjoyment-free food, this badly needed guidebook will help all those with gluten intolerance begin to live the "nearly normal" life they so deserve.  In a genial and easy-to-read manner, Jules shares tips and tricks of cooking gluten-free so that no one will ever know the difference.

To order this book, click here. 50% of all proceeds go towards funding Celiac Disease research.

A Patient-Expert Walks You Through Everything You Need to Learn and Do

If you've just been diagnosed with celiac disease, you're not alone: as many as 1 in 133 Americans have this autoimmune disorder characterized by an inability to digest gluten, a protein found in wheat and other grains. For ten years, Jules Shepard's gastrointestinal symptoms went misdiagnosed. Once the cause was identified, she experienced a rollercoaster of emotions and illness the year following, as she discovered what she could and could not eat through trial and error.

Now, in The First Year: Celiac Disease and Living Gluten-Free, Shepard explains everything you need to learn and do upon your or a family member's diagnosis.

• How celiac disease affects your entire body
• Eating gluten-free (and avoiding hidden glutens)
• Keeping your kitchen safe from cross-contamination
• Can I drink alcohol?
• Celiac and fertility
• Finding support groups
• Parenting a child with celiac disease
• Dining out, traveling, and entertaining

With a foreword by Dr. Alessio Fasano, this unique guide prioritizes all the most important information on diet and lifestyle changes for you. Day-by-day; week-by-week, month-by-month, learn how to safely, alter your diet, manage your symptoms, and adjust to living gluten-free. Complete with easy and delicious recipes for gluten-free baking, The First Year: Celiac Disease and Living Gluten-Free is your essential guide to a healthy life. 

JULES E. DOWLER SHEPARD is the author of Nearly Normal Cooking for Gluten-Free Eating and a spokesperson for the CFCR.

This book will be available for purchase through our website shortly!  In the meantime, you can purchase it through Jules' website, www.nearlynormalcooking.com/httpdocs/buyit.htm.

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